Families First Funeral Service
Understanding the Donation Process
More and more these days families are enquiring about the process of becoming an organ donar. Some common misconceptions that we often get asked include:
Myth: If I agree to donate my organs, the hospital staff won't work as hard to save my life.
Fact: When you go to the hospital for treatment, doctors focus on saving your life — not somebody else's. You'll be seen by a doctor whose specialty most closely matches your particular emergency.
Myth: Maybe I won't really be dead when they sign my death certificate.
Fact: Although it's a popular topic in the tabloids, in reality, people don't start to wiggle their toes after they're declared dead. In fact, people who have agreed to organ donation are given more tests (at no charge to their families) to determine that they're truly dead than are those who haven't agreed to organ donation.
Myth: Organ donation is against my religion.
Fact: Organ donation is consistent with the beliefs of most major religions. This includes Roman Catholicism, Islam, most branches of Judaism and most Protestant faiths. If you're unsure of or uncomfortable with your faith's position on donation, ask a member of your clergy.
Myth: I'm under age 18. I'm too young to make this decision.
Fact: That's true, in a legal sense. But your parents can authorize this decision. You can express to your parents your wish to donate, and your parents can give their consent knowing that it's what you wanted. Children, too, are in need of organ transplants, and they usually need organs smaller than those an adult can provide.
Myth: An open-casket funeral isn't an option for people who have donated organs or tissues.
Fact: Organ and tissue donation doesn't interfere with having an open-casket funeral. The donor's body is clothed for burial, so there are no visible signs of organ or tissue donation. For bone donation, a rod is inserted where bone is removed. With skin donation, a very thin layer of skin similar to a sunburn peel is taken from the donor's back. Because the donor is clothed and lying on his or her back in the casket, no one can see any difference.
Myth: I'm too old to donate. Nobody would want my organs.
Fact: There's no defined cutoff age for donating organs. The decision to use your organs is based on strict medical criteria, not age. Don't disqualify yourself prematurely. Let the doctors decide at your time of death whether your organs and tissues are suitable for transplantation.
Myth: I'm not in the best of health. Nobody would want my organs or tissues.
Fact: Very few medical conditions automatically disqualify you from donating organs. The decision to use an organ is based on strict medical criteria. It may turn out that certain organs are not suitable for transplantation, but other organs and tissues may be fine. Don't disqualify yourself prematurely. Only medical professionals at the time of your death can determine whether your organs are suitable for transplantation.
Myth: I'd like to donate one of my kidneys now, but I wouldn't be allowed to do that unless one of my family members is in need.
Fact: While that used to be the case, it isn't any longer. Whether it's a distant family member, friend or complete stranger you want to help, you can donate a kidney through certain transplant centers. If you decide to become a living donor, you will undergo extensive questioning to ensure that you are aware of the risks and that your decision to donate isn't based on financial gain. You will also undergo testing to determine if your kidneys are in good shape and whether you can live a healthy life with just one kidney.
Myth: Rich and famous people go to the top of the list when they need a donor organ.
Fact: The rich and famous aren't given priority when it comes to allocating organs. It may seem that way because of the amount of publicity generated when celebrities receive a transplant, but they are treated no differently from anyone else. The reality is that celebrity and financial status are not considered in organ allocation.
Myth: My family will be charged if I donate my organs.
Fact: The organ donor's family is never charged for donating. The family is charged for the cost of all final efforts to save your life, and those costs are sometimes misinterpreted as costs related to organ donation. Costs for organ removal go to the transplant recipient.
It is important to know that in Australia the family of every potential donor will be asked to confirm the donation decision of their loved one before organ and tissue donation for transplantation can proceed.
Some families have discussed organ and tissue donation and may already know their loved one's donation decisions. Other families who have not discussed donation will also need to make a decision about whether their loved one will become a donor.
Organ and tissue donation involves removing organs and tissues from someone who has died (a donor) and transplanting them into someone who, in many cases, is very ill or dying (a recipient).
Organs that can be transplanted include the heart, lungs, liver, kidneys, intestine and pancreas.
Tissues that can be transplanted include heart valves and other heart tissue, bone, tendons, ligaments, skin and parts of the eye, such as the cornea and sclera.
Death must be determined before donation can take place.
Death can be determined in two ways:
- Brain death occurs when a person's brain permanently stops functioning.
- Circulatory death occurs when blood flow in the body permanently stops.
The information below is to support you and your family to make a decision about donation that is right for you and your loved one.
Understanding brain death
Brain death occurs when the brain has been so badly damaged that it completely and permanently stops functioning. This can occur as the result of severe head injury, bleeding in the brain such as a stroke or haemorrhage, brain infection or tumour, or lack of oxygen to the brain.
Just like any other part of the body, when the brain is injured, it swells. The brain is contained within a rigid box, the skull, which normally protects it from harm but also limits how much the brain can expand when it starts to swell. This is different to other parts of the body, such as an injured ankle, that can continue to swell without restriction. If the brain continues to swell, pressure builds up within the skull causing permanently damaging effects.
The swelling places pressure on the brainstem, where the brain joins with the spinal cord at the back of the neck. The brainstem controls many functions that are necessary for life including breathing, heart rate, blood pressure and body temperature.
As the brain swelling increases, the pressure inside the skull increases to the point that the blood vessels going to the brain tissue are squashed. Eventually the blood, which contains the oxygen, stops going to the brain (see Diagram 1). Without blood and oxygen, brain cells die. Unlike many other cells in the body, brain cells cannot re-grow or recover. If the brain cells die, that person's brain will never function again, and the person has died, which is called 'brain death'.
The brain and brainstem control many of the body's vital functions, including breathing. When a person has suffered a brain injury, they are connected to a machine called a ventilator, which artificially circulates oxygen into the lungs. The oxygen is then pumped around the rest of the body by the heart. The heartbeat does not rely on the brain, but is controlled by a natural pacemaker in the heart that functions when it is receiving oxygen.
While a ventilator is providing oxygen to the body, the person's chest will continue to rise and fall giving them the appearance of breathing, their heart will continue to beat and they will feel warm to touch. These signs can make brain death difficult to understand. However, even with continued ventilation, the heart cannot continue to beat forever and will eventually stop functioning.
How do doctors know that a person's brain has died?
People who are critically ill in the hospital are under constant observation by the specialist medical and nursing teams caring for them and are closely monitored for changes in their condition. There are a number of physical changes that take place when the brain dies. These include loss of pupillary reaction to light, inability to breathe without the ventilator, and reduced heart rate, blood pressure and body temperature.
When the medical team observes these changes they will perform clinical brain death testing to confirm whether the brain has stopped functioning or not.
Two senior doctors will independently conduct the same set of clinical tests at the bedside. The doctors performing the brain death testing will be looking to see if the person has any:
- response to a painful stimulus
- response to light by the pupil of the eye
- blinking response when the eye is touched
- eye movement response when ice cold water is put into the ear canal
- cough or gag reaction when the back of the throat is touched
- ability to breathe when the person is disconnected from the ventilator.
There are times when the patient's injuries mean that they are not able to have all of these clinical brain death tests done. For example, severe facial injuries may restrict access to the eyes or ears. In these circumstances, medical imaging tests are done to check if there is any blood flow to the brain. These may include tests like a dye test of the blood vessels in the brain (a cerebral angiogram or cerebral perfusion scan). The hospital staff will provide further information if these tests are necessary.
What happens after brain death has been confirmed?
Once brain death has been confirmed, the patient will remain connected to the ventilator while members of the medical team speak with the person's family about the next steps. These will include the person's end-of-life wishes, the opportunity for organ and tissue donation and timing of removing the ventilator.
If the family supports donation, everything possible will be done to make sure those wishes are fulfilled. Timeframes can vary as every circumstance is different. It can take up to 24 hours for the necessary arrangements for donation to be made. The person will remain connected to the ventilator during this time to keep blood and oxygen circulating to the organs. In some cases medications are necessary to ensure organs remain suitable for donation. If it becomes clear that organs are no longer suitable for donation, donation of eye, heart, bone and skin tissues may still be possible.
When the arrangements for donation have been made, the person will be moved to the operating theatre for the organ retrieval surgery. The ventilator will be removed during the operation.
If donation is not supported, the doctor will speak with the family about removing the ventilator.
When the ventilator is removed, the person's heart will stop beating due to a lack of oxygen, and their skin will become cold and pale because blood is no longer being circulated around the body.
Care and respect are always maintained during the end of life process, irrespective of whether or not donation proceeds.
Understanding circulatory death
Circulatory death occurs when a person stops breathing and their heart stops beating. This can occur after a sudden illness or accident, or can be the final stage of a long illness. It can also occur when a person suffers a head injury that does not cause their brain to die, but is still so severe that the person cannot breathe properly to sustain a heartbeat on their own. During such a time, a ventilator can artificially breathe for them to keep the heart beating and circulate oxygen around the body.
In these circumstances, withdrawal of active treatment is only made when continuing treatment provides no prospect for recovery, death is inevitable and the patient is at the end of life. The priority is then palliative care with the relief of suffering and compassionate end of life care. The withdrawal of active treatment is always discussed and agreed with the family (and patient if possible). Only when this decision has been made, is there any discussion about donation after circulatory death.
What happens after the doctors believe the patient's heart is going to stop beating?
When doctors have determined that the ongoing treatment with the ventilator is not going to make the person better, they will speak with the person's family about the next steps including the person's end-of-life wishes and taking away the things that are not working such as the ventilator.
When the ventilator is removed, the person's breathing will not be able to get oxygen to the heart. The heart will stop beating because it is no longer receiving oxygen and then all the other organs stop working, including the brain and the person will die.
If the doctors expect that the person will stop breathing and die within 90 minutes of taking away the ventilator, there may be the opportunity for organ and tissue donation.
Donation after circulatory death is only possible within this 90 minute period, because when the ventilator is removed, oxygen and blood stop being circulated around the body. Organs and tissues will then begin to deteriorate as they require blood and oxygen to remain suitable for donation.
If the family supports donation, everything possible will be done to make sure those wishes are fulfilled. However, it can be very difficult to predict the exact time it will take for a person to die following removal of the ventilator and other drugs that may be supporting them. Some patients die within 10 or 20 minutes, and donation may be possible. Others may not die until some hours later. If this occurs, organ donation will no longer be possible but donation of eye, heart, bone and skin tissues may still be possible.
If donation is not supported by the family, the doctor will speak with the family about removing the ventilator. When the ventilator is removed, the person's heart will stop beating due to a lack of oxygen, and their skin will become cold and pale because blood is no longer being circulated around the body.
Care and respect is always maintained during the end of life process, irrespective of whether or not donation proceeds.
Families First Funeral Service